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ACP PRO Venous Registry Collects Data on 19,000 Unique Patients and Counting

April 18, 2017 ACP Blog

As patient and payer needs continue to change, verifiable data in clinical practice is more important than ever. Understanding the scope of venous disease, the most effective treatment options and how those options affect quality of life for patients, improves care and patients’ lives, as well as allowing for engagement with payers, policy-makers and the public.

“There are tremendous pressures in our specialty – disease states that are unrecognized, patient outcomes are largely nonexistent, and declining reimbursement for procedures,” states Dr. Marlin Schul. “Additionally, the patient’s voice is critical. When captured, this allows us to identify both the quality of life and economic benefit as perceived by our patients.”

Led by Drs. Marlin Schul and Willy Chi, the ACP PRO Venous Registry is the only dedicated venous research database populated with data from participating practice electronic medical records (EMR) systems. While eliminating redundant manual entry, the registry also provides more than 600 data fields specific to deep and superficial venous disease. The registry represents the most comprehensive picture of vein care through the collection of both physician and patient reported data. As science advances, the system will grow without limitations, allowing an infinite number of new diagnoses, procedures and treatments to be added quickly and easily for future use.

ACP PRO Venous Registry data provides investigators and practitioners valuable insight into diagnostic and treatment efficacy through:

• Treatment outcome benchmarks
• Venous disease patient demographics
• Quality of Life (QoL) indicators based on treatment options
• Accurate and comprehensive vein care statistics
• Commonalities in treatment protocols

The database now contains more than 19,000 unique patients and 77,000 patient records from 99 physicians in 90 locations. With data from Vein Clinics of America, and discussions to add Centers for Vein Restoration (CVR) and Circulatory Centers, along with three certified EMR vendors – StreamlineMD, Aprima, and Medstreaming – the data is available, which can be utilized to conduct meaningful, evidence-based research.

Dr. Chi is the first to utilize the registry resources with a study entitled, “Health Related Quality of Life Questionnaire in Compression Therapy and Epidemiological Pattern of Registry Participants”. He presented his findings at the ACP Annual Congress this past November. The study will be published in Phlebology Journal later this year.

“If you are serious about veins and wish to continue to be reimbursed for your work, you should seriously consider registry participation that will allow you to not only easily capture your data, but will also allow patient involvement,” states Dr. Schul.

For more about the ACP PRO Venous Registry, please visit www.phlebology.org/registry. You can also view the registry dashboard at www.veinstats.org.